Motivating Miles Foundation, Inc. assists individuals and families facing a life-threatening illness to achieve acceptance, inner solace, and ensured legacy, through individualized journeys facilitating the fulfillment of lifelong desires.
Long-time SportsCenter anchor, Stuart Scott, passed away Sunday (January 4, 2014) after a seven year fight with cancer. Whether or not you are a fan of ESPN’s sports highlight show (SportsCenter), Scott’s enthusiastic and unique style or a sports fan at all, Stuart’s words during a recent acceptance speech are particularly poignant to all. See below an excerpt from his speech directly on point with Motivating Miles’ mission.
“When you die, that does not mean you lose to cancer. You beat cancer by how you live, why you live, and in the manner in which you live. So live. Live. Fight like hell. And when you get too tired, lie down, rest and let someone else fight for you. This whole fight, this journey, is not a solo venture. This is something that requires support.”
Debora is a lovely 26 year-old who was diagnosed with AML(Acute Myeloid Leukemia) in July 2011. She received chemotherapy and unfortunately relapsed in the fall of 2012, sadly around the time that she was 20 weeks pregnant with her first child. Deb delivered her baby prematurely in January 2013 in order to receive the toxic chemo regimen and ultimately undergo allogenic BMT (Bone Marrow Transplant) in February 2013. She is fortunately in remission now, but she has developed Graft-vs.-Host-Disease (GVHD) in her eyes, as a result of her treatment. The GVHD is causing her extreme dryness, irritation and pain in her eyes, which makes it difficult for her to see, be exposed to sunlight and generally go about her life (raising a new baby) as she otherwise would.
She is using special eyes drops and has been seen at Mass Eye and Ear for special care. She briefly used PROSE lenses on a trial through Boston Foundation for Sight, which has been the only treatment that works for her. However, the cost to obtain the PROSE lenses for the long-term is an obstacle Deb and her family cannot overcome. Deb lives in Hyannis, MA with her husband, Ricardo, and their 15-month-old daughter, Sophia. Ricardo is working only one (seasonal) job in order to be available at home to help Deb with the baby. Deb has been unable to work since her diagnosis and has not been able to return due to her eye issues. Through her team at Dana-Farber / Brigham & Women’s Cancer Center, Deb reached out to Motivating Miles and asked for help securing the lenses. Deb’s team expressed that the lenses will make a major difference in her recovery and will allow her to be able to return to work and resume a normal life with her husband and baby.
In May 2014, in collaboration with the Joe Andruzzi Foundation, Motivating Miles agreed to fund the purchase of long-term PROSE lenses for Deb!
Deb was not expected to survive her relapse last year, but she miraculously has done so and is hopeful that with PROSE lenses, she will be able to truly enjoy her future with Ricardo and Sophia. MM is thrilled to help this wonderful family.
*All proceeds to benefit Motivating Miles Foundation, Inc.
Don’t miss out on theevent of the 2013 fall season! Motivating Miles has been selected as the charity partner for the New Hampshire seacoast’s first annual Pink & Brewfest!
Have you ever wondered how they flavor beers with pomegranate, blueberry, or chocolate? Do you stand in the beer aisle at the grocery store wanting to try something new but after staring you just grab the same old thing? You know that beer is made from hops, But did you know that hops are the female flowers of the Humulus Lupulus plant, and hops are used as a flavoring and stability agent in beer?
Well, now’s the time to try something new. Learn about beer production, wort, and hops from the experts. You will meet brewers from some of the most popular Breweries. They will help you find something new that agrees with your taste buds. While tasting and learning you can snack on tasty morsels from some of the best local restaurants. Then you can mix it up by window shopping with fabulous boutiques and local vendors. Come enjoy one of the New Hampshire seacoast’s marquee events!
Many thanks to editor, Robert Michaelson, and Amherst Patch, for a job well done putting Motivating Miles’ mission on display, and helping introduce our important cause to the Amherst, NH community and beyond.
Check out Robert’s fantastic article here!
To follow and support Amherst Patch (who has so generously supported MM) subscribe to the Amherst Patch Newsletter here!
Meet our latest Journey recipients, 62 year old Lynda, from Somersworth, NH, and her two daughters, Tina and Kenilynn.
Lynda has lung cancer which has metastasized to her brain, and is currently on hospice care.
For their Journey, MM is teaming up with Amy’s Treat to provide these three ladies a special weekend “get-away” to Mills Falls Hotel in Meredith, NH, set on picturesque Lake Winnipesaukee. The ladies will enjoy top notch cuisine, rustic, log cabin luxury, and a “spa day” where they will be pampered by Mills Falls professional staff. The experience will be documented by the very talented photographer, Karen Bobotas, who will also put together an album for the women to have as a keepsake.
Most importantly, the trip will enable these three strong women to relax and enjoy themselves in a beautiful setting, and spend valuable quality time together.
On Saturday, February 2nd at 7PM, long time friend of Motivating Miles, and immensely talented artist and accomplished dancer, Tiffany Jacobs, will showcase her original production, DANCE, at the Souhegan High School theatre in Amherst, New Hampshire. Jacobs has generously offered to donate all proceeds from the performance to Motivating Miles.
You will be mesmerized and moved by this emotionally charged live dance performance, produced by Jacobs herself; Motivating Miles’ Journey recipients serve as the show’s inspiration. On display will be the talents of dancers from some of New Hampshire’s finest studios, including: Bedford Dance Center, Dimensions in Dance, Joy of Dance, New Hampshire School of Ballet, The Dance Company, and Vouli Dance. Jacobs has pulled together an all star lineup of talent, paired with a phenomenal music selection that will pique your palette of emotions.
DANCE is a “must-see” performance, so please mark your calendars and spread the word!
WHAT:DANCE, an original dance production, inspired by the families that Motivating Miles has helped, and performed by New Hampshire’s top dance talent.
WHEN: Saturday, February 2, 2013 @ 7PM
WHERE: Souhegan High School theatre (Souhegan High School / Amherst, NH)
COST: $10 / ticket (tickets can be purchased at the door OR ahead of time by calling 603.554.6983 OR through the dance companies listed above)
In addition to Christmas Eve, today we celebrate the beautiful life of Motivating Miles’ inspiration, Frances Ginsberg. An accomplished opera singer with an angelic voice, Frances passed away on Christmas Eve of 2010. Among many other things, Frances was a loving sister and aunt, generous friend to thousands, larger-than-life personality, and a true New Yorker!
Frances is one of three individuals for whom Motivating Miles was originally founded. Her passion and enthusiasm for each day serves as a perfect illustration of the philosophy underlying MM’s mission. Frances’ legacy is strong and we honor her today.
Listen to Frances here: http://www.youtube.com/watch?v=OOKNe7877hQ
Join Motivating Miles at The Page Restaurant & Bar in Portsmouth, NH on Friday, June 8th @ 8PM, to kick off the summer in style, and for a cause! Enjoy live music, good food, cheap beer, and great prizes! All proceeds go to Motivating Miles, and will help MM help local families dealing with a terminal illness.
WHERE: The Page Restaurant & Bar (172 Hanover Street, Portsmouth, NH)
WHEN: Friday, June 8th @ 8PM
WHAT: MM benefit party to kick off the summer, at one of the most popular bars in the northeast … with live music, Red Sox tickets and other great give-a-ways, top-notch food, and ice cold beer!
Hope to see you (and 500 of your closest friends) there!!