21 year old, Elaine, from Rochester, NH, was diagnosed at age 17 with metastic Ewing Sarcoma. Elaine received intensive chemotherapy and radiation therapy as her primary treatment for many months, and the cancer went into remission. Unforuntately, in June of 2011, Elaine experienced a relapse. Her cancer is now characterized by doctors as recurrent, refractory, metastic Ewing Sarcoma. In December, 2011, Elaine, her family, and her medical team decided that the potential benefits of further chemotherapy were outweighed by the risks and horrific side effects. As of April, 2012, Elaine’s medical team has set primary treatment goals of relieving Elaine’s symptoms and maximizing her quality of life. That’s where MM comes in!
In early April of 2012, Elaine’s social worker, Sigrid, contacted Motivating Miles, and made the introduction. MM staff was fortunate to be able to visit Elaine and her family in Rochester, NH, as discuss the possibility of an MM Journey! Elaine’s strong interest in quality family time became evident when she proclaimed, “I just want a family vacation with all of us!” The rest of the family also stressed the importance of having the opportunity to enjoy each other as a unit, away from the physical, mental, and emotional drain that comes with the treatment of a terminal illness. An avid movie buff, Elaine brainstormed “cool” Journey options that would include movies and family time (her two favorite hobbies!). After much deliberation, she thought, “what about Universal Studios?!!” And off Motivating Miles went, flying into high gear, creating the perfect family vacation (Journey) for Elaine and her family, to Universal Studios!
Below, read social worker, Sigrid’s “journey” request letter to MM, on behalf of Elaine:
Dear Motivating Miles Foundation,
I am so appreciative of what your organization is doing to help fill this gap in health care/hospice. It truly is an amazing gift to individuals and family facing a terminal illness. What that in mind, this letter is to introduce you to someone we are helping, and hoping your organization may also be able to help.
Elaine is a 21 year old woman, who was diagnosed at age 17 with Ewing Sarcoma. She has received her care through Dana Farber (Boston, MA). She has gone through all available treatments at this point. We admitted her to our Hospice program in March (2012).
Elaine resides with her family in Rochester, NH. She has an older sister, younger brother, and mother, Karen, and father, Les. Elaine has expressed to me her desire to have a “family vacation with all of us.” She would like to go to Universal Studios in Orlando, Florida. At this time she is mobile, and would be able to trave. I have discussed Motivating Miles with Elaine and her father, Les, provided them with some information, and they are very interested! Please let me know if you need additional information.
Thank you for your consideration, and again for all you do!
Kind Regards, Sigrid.
More info (and pictures) from Elaine & family’s Journey to Universal Studios coming soon!
To donate directly to Elaine’s Journey, click here!